MAP Publication

ISPOR 2016 – Vienna: Review of National Policies for Rare Diseases Across EU Countries

2016 |

In 2009 the European Commission (EC) released recommendations on actions in the field of rare diseases. The objective of this research was to review the policies in place for rare diseases before the EC recommendations, and evaluate levels of achievement of the policies in meeting the EC recommendations, in particular, focusing on EU collaborative research, neonatal screening and the number of rare disease registries per country.


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